Charleigh Pollock has a neurological disorder called Batten disease that leaves her with recurring severe seizures and ...

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For 7-year-old Emma, the rage is a symptom of Batten disease, the fatal, rare illness with which she was diagnosed at age 4. “But I have to take the book away.

Amelia Palermo pictured with her parents, Philip and Jennifer Palermo. The Washington-based family were devastated in 2019 when they received the diagnosis of CLN1, also know as Batten disease.

"Batten disease is terrible; it's one of many severe terrible diseases that strike infants and children. It starts slowly and then rapidly gets worse," Bonkowsky added.

Frank Batten Sr., who created television’s Weather Channel in 1982 amid skepticism that there was an audience for 24 hours of news on storms and temperature readings, has died.