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'He is our wee warrior': Mother opens up about impact of Dravet Syndrome
Grainne Connolly will never forget the day her son, Hayden, had a life-threatening seizure linked to Dravet Syndrome.
The Impartial Reporter2d
'He is our wee warrier': Mother opens up about Dravet Syndrome
Grainne Connolly will never forget the day her son, Hayden, had a life-threatening seizure linked to Dravet Syndrome.
From $10k to $31.70: Massive savings for severe epilepsy sufferers after drug added to PBS
The syndrome typically begins when children are 6 months to 12 months old, and the mortality rate is 15 per cent to 20 per ...
Isle of Man Today4d
'We didn’t know if we were celebrating son's first or last birthday due to diagnosis'
‘We didn’t know if we were celebrating his first birthday - or his last.’ The family’s turning point came when they found ...
heraldsun.com.au6d
Government lists life-changing epilepsy drug fenfluramine on PBS
Ms Sutton said her ‘world fell apart’ when they received their daughter’s diagnosis. Layla needs 24-hour care from the Suttons. Pictures: Tim Hunter “(Dravet syndrome patients) have got ...
Harmony Biosciences Holdings, Inc. (HRMY) Q1 2025 Earnings Call Transcript
Harmony Biosciences Holdings, Inc. ( NASDAQ: HRMY) Q1 2025 Earnings Call May 6, 2025 8:30 AM ET Brennan Doyle - Head, Investor Relations Jeffrey Dayno - President and Chief Executive Officer Adam ...
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Praxis Precision Medicines Highlights DEE Clinical Program Updates at Virtual Investor Event
Praxis shared pre-clinical data from four candidate ASOs showing significant increase in protein levels versus control in a humanized SCN2A mouse model, believed to be sufficient to offset the ...