Grainne Connolly will never forget the day her son, Hayden, had a life-threatening seizure linked to Dravet Syndrome.

Grainne Connolly will never forget the day her son, Hayden, had a life-threatening seizure linked to Dravet Syndrome.

The syndrome typically begins when children are 6 months to 12 months old, and the mortality rate is 15 per cent to 20 per ...

‘We didn’t know if we were celebrating his first birthday - or his last.’ The family’s turning point came when they found ...

Julián Isla, inspired by his son’s struggle with Dravet syndrome, founded Foundation 29 to harness AI for diagnosing rare ...

A pioneering clinical trial has transformed the lives of children with severe epilepsy, leaving their families overjoyed. One ...

Four year-old Layla’s cheeky grin hides the battle she’s bravely fought for almost her entire life, but now there’s an extra ...

Sergio was eventually diagnosed with Dravet syndrome ... nonprofit focused on using artificial intelligence to speed up the diagnosis of rare diseases. AI could gather and analyse the massive ...

It took over 10 months of anxiety, uncertainty and missed treatment to get a final diagnosis: Dravet syndrome, a severe neurological condition mostly affecting young children. It was an odyssey of ...

Albie Kelly and Freddie Truelove, both seven and have been diagnosed with Dravet syndrome, are among the children who have been given a new lease of life, their families said. Dravet syndrome ...

Ms Sutton said her ‘world fell apart’ when they received their daughter’s diagnosis. Layla needs 24-hour care from the Suttons. Pictures: Tim Hunter “(Dravet syndrome patients) have got ...