In addition, the Vedder family is a musical bunch. Jill starred in one of Eddie’s music videos, while both Olivia and Harper have performed alongside their dad on stage.

Jill Vedder, chairwoman of EBRP, added: “It’s amazing to witness how far we’ve come. Epidermolysis Bullosa may be rare, but through the tireless work of our community, our message is ...

But recently, Vedder welcomed his daughter, Harper, to the stage for a special performance of Taylor Swift’s “The Best Day.” But given his background, Vedder was sure to add in a little ...

Moderated by Tribeca's Casey Baron, Tang appeared on the brief panel with Jill Vedder, Matter of Time director Matt Finlin, EBRP CEO Michael Hund, and a young EB patient, Rowan, and her mother, Kate.